Strengthening global public health surveillance through data and benefit sharing

Michael Edelstein, Lisa M. Lee, Asha Herten-Crabb, David L. Heymann, David R. Harper

Research output: Contribution to journalReview articlepeer-review

54 Scopus citations

Abstract

Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, those interpreting and using the data generated by others, those facilitating the data-sharing process, and those deriving and contributing to the benefit. An expert consultation conducted by Chatham House outlined 7 principles to encourage the process of equitable data sharing: 1) building trust, 2) articulating the value, 3) planning for data sharing, 4) achieving quality data, 5) understanding the legal context, 6) creating data-sharing agreements, and 7) monitoring and evaluation. Sharing of public health surveillance data is best done taking into account these principles, which will help to ensure data are shared optimally and ethically, while fulfilling stakeholder expectations and facilitating equitable distribution of benefits.

Original languageEnglish
Pages (from-to)1324-1330
Number of pages7
JournalEmerging Infectious Diseases
Volume24
Issue number7
DOIs
StatePublished - Jul 2018
Externally publishedYes

Bibliographical note

Publisher Copyright:
© 2018, Centers for Disease Control and Prevention (CDC). All rights reserved.

Funding

This manuscript highlights the high-level principles identified as part of a project called “Strengthening Data Sharing for Public Health” conducted by the Chatham House Centre on Global Health Security and funded by the Bill and Melinda Gates Foundation.

FundersFunder number
Bill and Melinda Gates Foundation

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