Real-Time Dissemination of Aggregate Data on Presentation and Outcomes of Patients With Venous Thromboembolism: The RIETE Infographics Project

The RIETE Investigators

doi:10.1177/1076029620931200

Real-Time Dissemination of Aggregate Data on Presentation and Outcomes of Patients With Venous Thromboembolism: The RIETE Infographics Project

The RIETE Investigators

Bar-Ilan University - Azrieli Faculty of Medicine

Research output: Contribution to journal › Article › peer-review

1 Scopus citations

Abstract

In the current era of patient empowerment and precision medicine, access to timely information is critical to decision-making. Unfortunately, we currently lack patient-specific, real-time data about clinical presentation, risk of thrombotic or hemorrhagic events, key risk factors, and adverse outcomes in patients with venous thromboembolism (VTE). Accordingly, the Registro Informatizado Enfermedad TromboEmbólica (RIETE) investigators developed a tool to provide an open-source, real-time graphic representation of VTE-related data derived from over 90 000 patients with confirmed VTE. This information is intended to facilitate discussion in the informed decision-making process. The current article describes the aims, rationale, methods, and ongoing and future efforts of the real-time VTE infographics developed by the RIETE registry collaborators.

Original language	English
Journal	Clinical and Applied Thrombosis/Hemostasis
Volume	26
DOIs	https://doi.org/10.1177/1076029620931200
State	Published - 2020

Bibliographical note

Publisher Copyright:
© The Author(s) 2020.

Funding

The authors express their gratitude to Sanofi Spain for supporting this Registry with an unrestricted educational grant. The authors also thank the RIETE Registry Coordinating Center, S&H Medical Science Service, for their quality control data, logistic and administrative support. The author(s) received no financial support for the research, authorship, and/or publication of this article.

Funders
S&H Medical Science Service

Keywords

pulmonary embolism
risk assessment
thrombosis

Access to Document

10.1177/1076029620931200

Cite this

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title = "Real-Time Dissemination of Aggregate Data on Presentation and Outcomes of Patients With Venous Thromboembolism: The RIETE Infographics Project",

abstract = "In the current era of patient empowerment and precision medicine, access to timely information is critical to decision-making. Unfortunately, we currently lack patient-specific, real-time data about clinical presentation, risk of thrombotic or hemorrhagic events, key risk factors, and adverse outcomes in patients with venous thromboembolism (VTE). Accordingly, the Registro Informatizado Enfermedad TromboEmb{\'o}lica (RIETE) investigators developed a tool to provide an open-source, real-time graphic representation of VTE-related data derived from over 90 000 patients with confirmed VTE. This information is intended to facilitate discussion in the informed decision-making process. The current article describes the aims, rationale, methods, and ongoing and future efforts of the real-time VTE infographics developed by the RIETE registry collaborators.",

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year = "2020",

doi = "10.1177/1076029620931200",

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journal = "Clinical and Applied Thrombosis/Hemostasis",

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AU - Bikdeli, Behnood

AU - Weinberg, Ido

AU - Jimenez, David

AU - Monreal, Annia

AU - Barba, Raquel

AU - Mira, Enrique

AU - Macrinici, Victor

AU - Krumholz, Harlan M.

AU - Hawkins, Mayra

AU - Monreal, Manuel

AU - Adarraga, M. D.

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AU - Aibar, M. A.

AU - Alfonso, J.

AU - Amado, C.

AU - Arcelus, J. I.

AU - Baeza, C.

AU - Ballaz, A.

AU - Barba, R.

AU - Barbagelata, C.

AU - Barrón, M.

AU - Barrón-Andrés, B.

AU - Blanco-Molina, A.

AU - Camon, A. M.

AU - Cañas, I.

AU - Castro, J.

AU - Cerdà, P.

AU - Criado, J.

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AU - Demelo-Rodríguez, P.

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AU - Domínguez, I. M.

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AU - Falgá, C.

AU - Farfán, A. I.

AU - Fernández-Capitán, C.

AU - Fernández-Reyes, J. L.

AU - Fidalgo, M. A.

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AU - Font, C.

AU - Font, L.

AU - Francisco, I.

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AB - In the current era of patient empowerment and precision medicine, access to timely information is critical to decision-making. Unfortunately, we currently lack patient-specific, real-time data about clinical presentation, risk of thrombotic or hemorrhagic events, key risk factors, and adverse outcomes in patients with venous thromboembolism (VTE). Accordingly, the Registro Informatizado Enfermedad TromboEmbólica (RIETE) investigators developed a tool to provide an open-source, real-time graphic representation of VTE-related data derived from over 90 000 patients with confirmed VTE. This information is intended to facilitate discussion in the informed decision-making process. The current article describes the aims, rationale, methods, and ongoing and future efforts of the real-time VTE infographics developed by the RIETE registry collaborators.

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KW - risk assessment

KW - thrombosis

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Real-Time Dissemination of Aggregate Data on Presentation and Outcomes of Patients With Venous Thromboembolism: The RIETE Infographics Project

Abstract

Bibliographical note

Funding

Keywords

Access to Document

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