Palliative care in advanced dementia: Comparison of strategies in three countries

Shelley A. Sternberg, Shiri Shinan-Altman, Ladislav Volicer, David J. Casarett, Jenny T. van der Steen

Research output: Contribution to journalArticlepeer-review

11 Scopus citations
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Abstract

Palliative care including hospice care is appropriate for advanced dementia, but policy initiatives and implementation have lagged, while treatment may vary. We compare care for people with advanced dementia in the United States (US), The Netherlands, and Israel. We conducted a narrative literature review and expert physician consultation around a case scenario focusing on three domains in the care of people with advanced dementia: (1) place of residence, (2) access to palliative care, and (3) treatment. We found that most people with advanced dementia live in nursing homes in the US and The Netherlands, and in the community in Israel. Access to specialist palliative and hospice care is improving in the US but is limited in The Netherlands and Israel. The two data sources consistently showed that treatment varies considerably between countries with, for example, artificial nutrition and hydration differing by state in the US, strongly discouraged in The Netherlands, and widely used in Israel. We conclude that care in each country has positive elements: hospice availability in the US, the general palliative approach in The Netherlands, and home care in Israel. National Dementia Plans should include policy regarding palliative care, and public and professional awareness must be increased.

Original languageEnglish
Article number44
JournalGeriatrics (Switzerland)
Volume6
Issue number2
DOIs
StatePublished - 22 Apr 2021

Bibliographical note

Publisher Copyright:
© 2021 by the authors. Licensee MDPI, Basel, Switzerland.

Funding

Salary support for J.T.v.d.S. which facilitated data collection and writing of the article was provided by the European Research Council, Consolidator Grant no 771483.

FundersFunder number
Horizon 2020 Framework Programme771483
European Commission

    Keywords

    • Cross-cultural comparison
    • Dementia
    • Health policy
    • Palliative care

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