Monetary valuation of personal health data in the wild

Andy Alorwu, Niels van Berkel, Aku Visuri, Sharadhi Suryanarayana, Takuya Yoshihiro, Simo Hosio

Research output: Contribution to journalArticlepeer-review

Abstract

The value of personal health data continues to be a debated topic in HCI and society more broadly. We investigate the monetary value people attach to their health data. Using a custom mobile app for 14 days with 55 participants, we collected health data (sleep duration, sleep quality, pain intensity, wake-up times) and a daily monetary data valuation using a reverse second-price auction. Participants bid to sell their data to a for-profit company, the government, or academia. Our findings indicate that people value their data differently based on who is buying. We also show that people are interested in monetizing their personal health data despite privacy and data protection concerns. The presented study helps us understand the data value landscape and paves way to a healthier data-driven future where people may benefit more from their own contributions, either in monetary or other forms.

Original languageEnglish
Article number103241
JournalInternational Journal of Human Computer Studies
Volume185
DOIs
StatePublished - May 2024
Externally publishedYes

Bibliographical note

Publisher Copyright:
© 2024 The Authors

Funding

This research is connected to the GenZ strategic profiling project at the University of Oulu, supported by the Academy of Finland (project number 318930 ), CRITICAL ( Academy of Finland Strategic Research , 335729 ), Academy Research Fellow funding by Academy of Finland (grants 356128 , 349637 and 353790 ), and Carlsberg Foundation ( CF21-0159 ). Part of the work was also carried out with the support of Biocenter Oulu, spearhead project ICON.

FundersFunder number
CRITICAL335729, 353790, 356128, 349637
Academy of Finland318930
CarlsbergfondetCF21-0159
Biocenter, University of Oulu

    Keywords

    • Auctions
    • Low back pain
    • Personal data
    • Sleep
    • Valuation

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