Mapping the Dilemmas Parents Face with Disclosing Autism Diagnosis to their Child

Nitsan Almog, Orit Kassel, Nili Levy, Tamir Gabai

Research output: Contribution to journalArticlepeer-review


The diagnosis of autism is often delivered solely to the parents, a practice that forces them to confront the dilemma of whether, when and how they should disclose it to the child. The present study seeks to probe deeper into the phenomenon of diagnosis disclosure and lead to a clearer understanding of the dilemmas parents? face. This article presents an analysis of a focus group and an online survey conducted with parents. The analysis produced a model that maps parents’ dilemmas regarding diagnosis disclosure to their child. The dilemmas, found to be complex and interconnected, concern the invisible nature of autism, the word autism and stigma, time motif, child’s environment, the act of disclosure itself, and the child’s personal narrative.

Original languageEnglish
Pages (from-to)4060-4075
Number of pages16
JournalJournal of Autism and Developmental Disorders
Issue number10
Early online date11 Aug 2022
StateE-pub ahead of print - 11 Aug 2022
Externally publishedYes

Bibliographical note

Publisher Copyright:
© 2022, The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.


  • Autism
  • Diagnosis disclosure
  • Dilemma
  • Identity
  • Parents


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