TY - JOUR
T1 - Long-Term Respiratory Support for Children and Adolescents in Austria
T2 - A National Survey
AU - Weiss, S.
AU - Van Egmond-Fröhlich, A.
AU - Hofer, N.
AU - Pfleger, A.
AU - Rath, R.
AU - Schwarz, R.
AU - Kurz, H.
AU - Waibel, V.
AU - Kenzian, H.
AU - Kommer, E.
AU - Wadlegger, F.
AU - Stelzl, W.
AU - Keck, B.
AU - Grigorow, I.
AU - Kerbl, R.
AU - Sauseng, W.
AU - Frischer, T.
AU - Eber, E.
AU - Bernert, G.
N1 - Publisher Copyright:
© Georg Thieme Verlag KG
PY - 2016/1
Y1 - 2016/1
N2 - Background: Population-based data on pediatric patients on long-term respiratory support (LTRS) in Austria are lacking. This study aimed to record the pediatric departments active in this field, as well as number and characteristics of patients on LTRS. Methods: A national cross-sectional study was carried out by means of questionnaires sent to all pediatric departments in Austria. Results: All departments answered to the questionnaires. On June 1st, 2013, the reference day for this study, 12 of the 41 pediatric departments in Austria were active in the field. At this time, these centers were caring for 143 patients, 111 (77.6%) of them under 18 years, which corresponds to a prevalence of 7.4 per 100 000. The patients suffered from neuromuscular disorders (44%), other neurological disorders (18.9%), disorders of respiratory drive (9.1%), obstructive sleep apnea (8.4%), thoracal and spinal diseases (8.4%), pulmonary disorders (4.9%) and other diseases (6.3%). Continuous positive airway pressure was used in 6.3%, non-invasive ventilation in 60.1% and invasive ventilation in 33.6% of the patients, respectively. LTRS was performed at home in 92.3%. Conclusion: LTRS represents a common management strategy in children and adolescents with a variety of disorders. Census reports such as this one provide the basis for appropriate planning of resource allocation. The age distribution of our patients shows the need for structured transition into adult care.
AB - Background: Population-based data on pediatric patients on long-term respiratory support (LTRS) in Austria are lacking. This study aimed to record the pediatric departments active in this field, as well as number and characteristics of patients on LTRS. Methods: A national cross-sectional study was carried out by means of questionnaires sent to all pediatric departments in Austria. Results: All departments answered to the questionnaires. On June 1st, 2013, the reference day for this study, 12 of the 41 pediatric departments in Austria were active in the field. At this time, these centers were caring for 143 patients, 111 (77.6%) of them under 18 years, which corresponds to a prevalence of 7.4 per 100 000. The patients suffered from neuromuscular disorders (44%), other neurological disorders (18.9%), disorders of respiratory drive (9.1%), obstructive sleep apnea (8.4%), thoracal and spinal diseases (8.4%), pulmonary disorders (4.9%) and other diseases (6.3%). Continuous positive airway pressure was used in 6.3%, non-invasive ventilation in 60.1% and invasive ventilation in 33.6% of the patients, respectively. LTRS was performed at home in 92.3%. Conclusion: LTRS represents a common management strategy in children and adolescents with a variety of disorders. Census reports such as this one provide the basis for appropriate planning of resource allocation. The age distribution of our patients shows the need for structured transition into adult care.
KW - Austria
KW - child
KW - chronic respiratory insufficiency
KW - epidemiology
KW - long-term respiratory support
UR - http://www.scopus.com/inward/record.url?scp=84954495436&partnerID=8YFLogxK
U2 - 10.1055/s-0035-1565240
DO - 10.1055/s-0035-1565240
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C2 - 26697738
SN - 0300-8630
VL - 228
SP - 42
EP - 46
JO - Klinische Padiatrie
JF - Klinische Padiatrie
IS - 1
ER -