TY - JOUR
T1 - Differential impact on parental quality of life
T2 - Comparing parents to children with autism spectrum disorder and those with other disabilities during the COVID-19 pandemic
AU - Laufer, Avital
AU - Isman, Esther
N1 - Publisher Copyright:
© 2024 John Wiley & Sons Ltd.
PY - 2024/3
Y1 - 2024/3
N2 - Background: Limited research has examined parental quality of life (QoL) for caregivers of children with special needs, mostly comparing parents of children with autism spectrum disorder (ASD) to those with typical development. This study examines QoL and related variables during the COVID-19 pandemic among two comparable groups: parents of children with ASD and parents of children with other diagnoses (non-ASD). Method: The sample included 175 Israeli parents (ASD = 101; non-ASD = 74). The parents were surveyed about the pandemic's effects on family life, child's function, and their own psychological distress, resilience, and QoL. Results: Parents in both groups reported deterioration in their child's academic, emotional, social, and functioning performance. However, higher psychological distress and more deterioration in child behaviour were reported in the ASD group. In both groups, QoL was positively associated with the introduction of distance learning and parental resilience and negatively associated with psychological distress, deterioration in the child's behaviour and functioning, and increased time spent with the child at home. An interaction analysis indicated that deterioration in a child's behaviour was linked to QoL solely within the ASD group, while home atmosphere was associated with QoL in the non-ASD group. Conclusion: While the COVID-19 pandemic imposed similar challenges on both parental groups, there is evidence that it may have been more challenging for the ASD group. This calls for further examination concerning parents with special needs children, and accordingly, tailoring targeted and specific help for them.
AB - Background: Limited research has examined parental quality of life (QoL) for caregivers of children with special needs, mostly comparing parents of children with autism spectrum disorder (ASD) to those with typical development. This study examines QoL and related variables during the COVID-19 pandemic among two comparable groups: parents of children with ASD and parents of children with other diagnoses (non-ASD). Method: The sample included 175 Israeli parents (ASD = 101; non-ASD = 74). The parents were surveyed about the pandemic's effects on family life, child's function, and their own psychological distress, resilience, and QoL. Results: Parents in both groups reported deterioration in their child's academic, emotional, social, and functioning performance. However, higher psychological distress and more deterioration in child behaviour were reported in the ASD group. In both groups, QoL was positively associated with the introduction of distance learning and parental resilience and negatively associated with psychological distress, deterioration in the child's behaviour and functioning, and increased time spent with the child at home. An interaction analysis indicated that deterioration in a child's behaviour was linked to QoL solely within the ASD group, while home atmosphere was associated with QoL in the non-ASD group. Conclusion: While the COVID-19 pandemic imposed similar challenges on both parental groups, there is evidence that it may have been more challenging for the ASD group. This calls for further examination concerning parents with special needs children, and accordingly, tailoring targeted and specific help for them.
KW - autism spectrum disorder
KW - child disability
KW - parent
KW - quality of life
KW - special education
UR - http://www.scopus.com/inward/record.url?scp=85185514403&partnerID=8YFLogxK
U2 - 10.1111/cch.13227
DO - 10.1111/cch.13227
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C2 - 38385572
AN - SCOPUS:85185514403
SN - 0305-1862
VL - 50
JO - Child: Care, Health and Development
JF - Child: Care, Health and Development
IS - 2
M1 - e13227
ER -